Forum

In this space, people from all over the world can come together to share experiences, stories and challenges, regarding their background. Immerse yourself in a supportive community with inspiring videos, examples of mutual help and a free space for meaningful connections. Help us foster dialogue and support between people with disabilities and professionals and create a global hub for sharing experiences and empowerment.

Resources

La Salud Sexual - Dincat

Description: A comprehensive guide promoting sexual health and well-being for people with intellectual disabilities.

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Codi de Bones Pràctiques - Adaptació Materials

Description: Best practices guide for adapting educational materials on sexuality for individuals with disabilities.

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Drets Sexuals i Reproductius - APF Mallorca

Description: Educational material advocating sexual and reproductive rights for people with intellectual and developmental disabilities.

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Entrevista a Judit Rius - Xarxanet

Description: Interview highlighting the rights of people with disabilities to have relationships and friendships without social prejudice.

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Educar en Sexualitat - SIDA Studi

Description: Guide for educators on promoting comprehensive sexual education for young people and vulnerable groups.

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Dear Son of a Disabled Woman

Description: The essay (also in audio format) by Rebekah Taussig examines ableist beliefs as they relates to parenthood.

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Maternità nelle donne con disabilità fisico-motorie: Uno Studio

Description: The study takes into consideration the structural, environmental and cultural barriers that influence the care provided during pregnancy, during childbirth and after childbirth, with the aim of highlighting what may be the positive aspects and the possible critical issues of the obstetric-gynecological care system.

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Tesi di Laurea Sperimentale in Ostetricia sulla maternità di donna con disabilità fisico-motoria

Description: Thesis "Maternity of a woman with physical-motor disabilities: structural and cultural barriers that characterize and guide the experience of pregnancy, childbirth and puerperium. Analysis and management of the health professional".

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Disabled mothers-to-be face indignity: ‘Do you have a man? Can you have sex?’

Description: Interview with Dr. Marie Flores, a physician in a wheelchair and analysis of modern medicine's approach to motherhood for women with disabilities

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Articolo “Feminist Disability Studies: dalla dimenticanza all’intersezionalità”

Description: Article by Francesca Arcadu on the usefulness of Feminist Disability to bridge the gap between feminist theory and anti-discrimination activism.

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Campos, M. y Sánchez, A. (2003). La mujer con lesión medular: sexualidad y maternidad. Revista Terapia Sexual y de Pareja, 16, pp. 315-323.

Description: Article addressing aspects related to sexuality and motherhood in women with acquired physical disabilities, exploring issues such as the relationship between self-concept and a person's sexual life, as well as the psychological and physioogical impact it causes.

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Chaparro, A. M. (2018). Acceso a la justicia de mujeres víctimas de violencia sexual: reflexión en el contexto colombiano. Universidad del Rosario, 13 (1), pp. 123-161.

Description: This article addresses the role of justice in confronting sexual violence against women with disabilities in the context of armed conflicts in Colombia.

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Cruz, M. P. (2014). Mitos acerca de la maternidad en mujeres con discapacidad. Perinatología y Reproducción Humana, 28 (2).  

Description: Research study on the processes of exclusion faced by women with disabilities when exercising their sexual and reproductive rights.

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Etxebarría, X. (2012). Maternidad — paternidad en personas con discapacidad intelectual. Plena inclusión España.

Description: This document encourages your rflection while provides a critical support for the right of people with intellectual disabilities to become parents.

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European Disability Forum. (2022). Forced sterilisation of persons with disabilities in the European Union.

Description: Report aimed at shedding light on the forced sterilisation of people with disabilities, a practice that continues to occur in countries across Europe and worldwide, constituting a violation of human rights.

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Gomiz, M. P. (2016). La sexualidad y la maternidad como factores adicionales de discriminación (y violencia) en las mujeres con discapacidad. Revista Española de Discapacidad, 4 (2), pp. 123-142.  

Description: Study on the violence and discrimination experienced by women with disabilities, particularly in relation to their sexuality and motherhood.

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Жена с увреждание роди напълно здраве дете Woman with a disability gave birth to a completely healthy child

Description: The article tells about a young disabled couple who had a perfectly healthy baby despite doctors' assurances that it was impossible.

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Жена с бъбречна недостатъчност роди напълно здраве дете Woman with kidney failure gave birth to a completely healthy child

Description: The article tells of a rare case of a woman with kidney failure who gave birth to a healthy child.

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"Да, хора като мен могат да имат деца!" – Какво е да родиш, когато си жена с физическo увреждане "Yes, people like me can have children!" - What it's like to give birth when you're a woman with a physical disability

Description: This is the story of a mother, Karen Hodge, who has a spinal cord injury and has been using a wheelchair since she was 15, but has a perfectly healthy 7-year-old child.

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Жена с рядка аномалия роди първото си дете в „Майчин дом“ Woman with a rare anomaly gave birth to her first child in the „Maternal Home“

Description: The article is about a mother with a rare anomaly who gave birth to her first child. The woman has 2 uteruses, 2 cervixes, a missing kidney, and cancer

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НАЦИОНАЛНА ПРОГРАМА ЗА ПОДОБРЯВАНЕ НА МАЙЧИНОТО И ДЕТСКО ЗДРАВЕ 2021–2030 Г. NATIONAL PROGRAM FOR IMPROVING MATERNAL AND CHILD HEALTH 2021–2030

Description: This article provides an overview of the national program for the improvement of maternal and child health in Bulgaria. Some health centers offer free help for women with pathological pregnancies.

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Не успях да намеря фотосесия на бременна жена с ампутация и затова си направих собствена I couldn't find a photo shoot of a pregnant woman with an amputation, so I made my own

Description: "Our Premature Children" Foundation tells the story with a photo shoot of a disabled pregnant woman

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Предимство за бременните жени в метрото Advantage for pregnant women in the subway

Description: At the initiative of the Sofia Municipality and Sheinovo Hospital, pregnant women in the metro will receive badges with the inscription "Baby on Board". At the metro ticket offices, every expectant mother will be able to receive her badge. By wearing it, the pregnant woman will be able to discreetly identify herself and not have to ask to be given a seat.

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Жена с рядкото заболяване синдром на Брук успя да роди здраво дете Woman with the rare disease Brooke's syndrome managed to give birth to a healthy child

Description: The article shows the story of Hira Ahmad from London, who is the first woman to give birth to a healthy baby despite suffering from the rare disease Brooke's Syndrome

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Έμφυλη βία και γυναίκες με αναπηρία

Description: This article discusses gender-based violence and women with disabilities. Τhe article refers to data taken from the US, EU, Canada and Australia on the probability of people (women) with disabilities, being victims of abuse, the factors that contribute to it, etc. The social norms that nurture such abusive behaviours are also discussed. Finally, some measures that have been taken and other actions that need to be taken to ensure that women with disabilities are treated with respect and equality are mentioned.

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Η εμπειρία της έμφυλης βίας σε γυναίκες με αναπηρία - «Κάτσε εδώ, πού θα πας; Ποιος θα σε δεχτεί όπως είσαι;» - The Press Project - Ειδήσεις, Αναλύσεις, Ραδιόφωνο, Τηλεόραση

Description: A very informative article with the contribution of Ms. Elia Charidis, researcher at the Diotima Center, discussing the gaps observed in awareness raising campaigns, in support services and the lack of trust of the victims to report of violence incidents . She also refers to the SAFEable documentary on Accessibility, Inclusion and Gender-based violence.

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Γυναίκα, Αναπηρία και Σεξουαλικότητα

Description: A Master Thesis paper on the interdisciplinarity of disabilities, exclusion, females, sexuality, feminism. It also discusses the findings from the focus groups conducted in the context of the thesis paper.

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Αντισύλληψη σε γυναίκες με διανοητική αναπηρία

Description: A Master Thesis paper on the contraception in females with intellectual disabilities, on coping with disabilities, in pregnancy during puberty, among others.

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«Ανάπηρες μητέρες σ΄έναν μισαναπηρικό κόσμο. Το πρότυπο της «ιδανικής μητέρας», η μετάβαση στη μητρότητα και οι προκλήσεις που αντιμετωπίζουν στην καθημερινή τους ζωή»

Description: This thesis studies the link between maternity and disability, the experiences of disabled mothers, the difficulties and challenges they face in their daily lives with personal narratives of the participants in an attempt to investigate the views on the 'ideal mother'.

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Abordatge de la doble discriminació envers les dones amb discapacitat

Description: Addressing double discrimination sgainst women with disabilities

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Canale Youtube di Giulia Lamarca

Description: Giulia Lamarca is a psychologist and trainer who travels the world as a travel blogger. On her YouTube channel she shares travel, accessibility tips for wheelchair users and stories of everyday life with her husband and children.

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Tedx - Come superare i propri limiti e farne una risorsa | Giulia Lamarca | TEDxTorino

Description: Giulia Lamarca is a psychologist and trainer and travels the world as a travel blogger. In this TEDxTorino, she invites each person to embrace their limitations and turn them into an resource, making them fellow travellers for life. Her limitation, the wheelchair that has accompanied her since 2011, is also what enables her to overcome it.

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Attitude - Parenting with a Disability: My Deaf Parents

Description: This episode of the youtube channel ‘Attitude’ shows the daily life of Monica and her husband, who are deaf, and their three children, who are all hearing.

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Tedx - Disabled Parenting in an Ableist World | Kara Ayers | TEDxCincinnatiWomen

Description: Kara Ayers, PhD, is the Associate Director and an Assistant Professor at the University of Cincinnati Center for Excellence in Developmental Disabilities (UCCEDD). She is Director of the newly formed Center for Dignity in Healthcare for People with Disabilities and also a co-founder of the Disabled Parenting Project. Dr. Ayers’ interests include disability identity/culture, bioethics, community inclusion, and the use of media to teach, empower, and reduce stigma.

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Tedx - La Rinascita delle bambine e delle donne con mutilazioni genitali. | Jasmine Abdulcadir | TEDxPadova

Description: Jasmine Abdulcadir is a gynaecologist in charge of the Obstetrics and Gynaecology Urgent Care Unit at the University Hospital of Geneva. Her aim is to offer comprehensive support to women who have undergone genital mutilation: deinfibulation surgery, clitoral reconstruction, training and psychosexual therapy are performed in the outpatient clinic.

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Tedx- What we can learn from parents with disabilities | Marjorie Aunos | TEDxWesternU

Description: Dr Marjorie Aunos is ais a single-mother-by-choice living with a Spinal Cord Injury and a psychologist conducting research on parenting with disabilities. Drawing on this research and personal experience, Dr Aunos explains why disabled parents are often the best source of advice for parents: because they have been forced to find solutions to complex needs quickly and effectively throughout their lives.

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Tedx- Forgotten: Reproductive health in women with disabilities | Hilary Brown | TEDxUTSC

Description: Dr. Hilary Brown explains how the health care system is not prepared in the same way to assist women with disabilities during pregnancy as women without disabilities and what needs to be done to implement it.

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YouTube - How disabled mothers are neglected by modern medicine

Description: Disabled women now get pregnant and give birth at the same rate as nondisabled ones, but modern medicine has turned its back on them. Los Angeles Times reporter Sonja Sharp explores the topic of disabled pregnancy through her reporting and her lived experience.

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YouTube- Vision of Motherhood: Parenting with a disability

Description: AJ MacDonald is a mother of two boys and her third child is on the way. She also has an autoimmune disease that will eventually leave her without sight and in the video she explains all the strategies she applies in her daily life.

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YouTube: H-CARDD (Health Care Access Research and Developmental Disabilities)

Description: H-CARDD is a research program that aims to enhance the overall health and well being of individuals with developmental disabilities through improved health care policy and improved services. H-CARDD research is conducted by dedicated teams of scientists, policymakers, and health care providers, working collaboratively.

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YouTube - Mothers with Intellectual Disabilities: Challenges and Resilience

Description: H-CARDD programme to support mothers with intellectual disabilities by offering them strategies and resources.

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CBC. (2023). These moms share joys and fears about parenting with a disability. CBC, PUSH. [Video]. YouTube.

Description: Documentary video about the motherhood experience of two women with disabilities.

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Espacio Madresfera. (2019). Nuevas miradas sobre la maternidad y la discapacidad. Espacio Fundación Telefónica Madrid. [Video]. YouTube.

Description: Video of the 2019 'Espacio Madresfera' conference, where topics related to the challenging conditions that mother hood with a disability can represent were discussed, in order to highlight this situation of overcoming, resilience, and optimism.

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La cadera de Eva. (2024). Derecho al placer: la asistencia sexual y erótica para mujeres con discapacidad. [Video]. YouTube.  

Description: Audiovisual interview in which the right to pleasure for women with disabilities is discussed without taboos, along with the barriers they face in society to fully develop as individuals.

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REDI. (2019). Derecho a la Maternidad con Apoyos para las Mujeres con Discapacidad. RediDerechos. [Video]. YouTube.  

Description: A short report advocating for the right to motherhood for women with disabilities, which, in the stated case, is systematically denied by the Argentine government by not providing the necessary suupport to make it a feasible reality. It discusses the role of the Personal Assistant as a fundamental figure for achieving independent living and full social inclusion.

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Visión 7. (2013). Discapacidad y maternidad. [Video]. Youtube.

Description: News program on Argentine public television where a segment is dedicated to disability and motherhood, discussing existing prejudices.

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Christine Lumilan

Description: This video follows Christine, who was born with mild Cerebral Palsy and is currently pregnant. She shares her experiences of navigating pregnancy while living with a disability. Join her on this journey as she offers insights, challenges, and personal moments. Don’t forget to like, subscribe, and comment!

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Жени с криле GIRL WITH WINGS

Description: The history of Dejana and Marko.

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Blog Rebekah Taussig

Description: Rebekah Taussig is a writer and lecturer with a PhD in Creative Non-fiction and Disability Studies. She writes to understand, claim and participate in changing cultural narratives about disability, motherhood and what it means to live in a human body, including from her personal experiences.

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Bradipi in Antartide- Mamma Autistica

Description: Autism in women is often not recognized until adulthood and they often get a diagnosis after their children. Sensations and strategies of an autistic mother of three children.

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Heller School-Article “Parents tips and Strategies from Parents with Disabilities”

Description: The National Research Center for Parents with Disabilities conducts research and provides training and technical assistance to improve the lives of parents with disabilities and their families. The Centre shares its findings on the website and also offers fact sheets, research papers and other resources.

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The Disabled Parenting Project

Description: The Disabled Parenting Project, which is part of the National Research Center for Parents with Disabilities, is on a mission to leverage technology in order to create opportunities for parents and prospective parents with disabilities to connect and interact, and serve as an information clearinghouse for relevant information about adaptive parenting.

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Gruppo Donne UILDM - Approfondimenti tematici: corpo, ginecologia, sessualità, gravidanza e maternità, vita indipendente, lavoro, amore e altri sentimenti, arte, spettacolo, sport, comunicazione, violenza sulle donne e lavoro di cura.

Description: The Gruppo donne UILDM is concerned with analyzing and arguing with its own reflections, and with the production of specific documents, the broad panorama of female disability, also thanks to the part of the materials organized in the thematic insights

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Ambulatorio ginecologico del Progetto 'Fior di Loto' per personecon disabilità a Torino

Description: The 'Fior di Loto' Project clinic offers complete gynecological visits to women with any disability on Monday mornings who are between the ages of 15 and 64 and are residents or domiciled in the Municipality of Turin.

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Servizio antiviolenza del Progetto 'Fior di Loto' per persone con disabilità a Torino

Description: The Service of the 'Fior di Loto' Project is aimed at men and women with disabilities who are victims of violence through the shared construction of exit and emancipation paths from the situation of mistreatment and abuse. For all services there is the possibility of having an LIS interpreter for the deaf who sign.

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Asociación Sexualidad y Discapacidad. (02 de diciembre de 2024).  

Description: Website of the 'Sexuality and Disability Association.' This association is composed of a multidisciplinary team dedicated to training, intervention, and research on sexuality within the context of disability.

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CEMUDIS. (n.d.). Confederación Estatal de Mujeres con Discapacidad.

Description: Website of the Spanish Confederation of Women with Disabilities ('CEMUDIS'), where information on current news is hosted and research studies are published. CEMUDIS is one of the leading organisations in the fight for the advocacy of the rights of women with disabilities.

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Fundación CERMI Mujeres. (n.d.).  

Description: Wesite of the CERMI Women Foundation, offering a wide range of services such as legal guidance, support, counseling, information, and training on gender issues, research studies, and advocacy for the discrimination faced by women, among other topics.

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Iniciativa Sexológica y Acción Social. (n.d.). In|Sex.

Description: Website of this renowned institution in the field of sexology studies, which seeks, through its social actions, to inspire transformation processes that enhance human development and respect for diversity. They offer research studies, news, and training on the subject.

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Instituto de las Mujeres. (n.d.). Gobierno de España, Ministerio de Igualdad.  

Description: Website portal of the Ministry of Equality of the Spanish Government, where free and relevant training and information are offered, along with other reference research data and publications.

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Caruso, M. F. (2023). Ejercicio de la maternidad en mujeres con discapacidad ¿Negación de un derecho o restricción razonable? Universidad Nacional de la Plata, Facultad de Ciencias Jurídicas y Sociales.

Description: Academic essay addressing the challenges surrounding the legal right to motherhood for women with disabilities, highlighting real examples drawn from the research context in which it was conducted (Argentina).

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Castellanos, E. (2021). La violencia sexual en las mujeres con discapacidad intelectual. Colección generosidad, género y discapacidad. CERMI y Fundación CERMI Mujeres.

Description: A state-level study promoted and coordinated by the Spanish Government Delegation Against Gender Violence, which has managed to compile a significant data registry since 2019, aiding in the development of future research lines and the extraction of conclusions.

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CEMUDIS. (2023). Catálogo recursos para la protección de los Derechos Humanos de las mujeres y niñas con discapacidad, Andalucía.

Description: Catalogue containing all the resources available in Andalusia for the protection of the human rights of women and girls with disabilities.

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CERMI, Fundación CERMI Mujeres y Foro Europeo de la Discapacidad. (2018). Poner fin a la esterilización forzosa de las mujeres y niñas con discapacidad.

Description: Report prepared by the European Disability Forum (EDF) and CERMI Women, presenting a justification and recommendations for political measures to prevent the forced sterilisation of women and girls with disabilities.

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Cuadrado, L. (2021). La maternidad en mujeres con discapacidad: una visión desde terapia ocupacional. Universidad de Oviedo, Facultad Padre Ossó.

Description: Research study providing a systematic review of all the barriers faced by women with disabilities who wish to become mothers or are in the process of doing so.

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Martínez, B. y Leonhardt, M. (2009). Maternidad y Discapacidad. ISBN: 978-84-96889-40-8.

Description: Publication by various authors that compiles a series of studies related to the experience of motherhood for women with disabilities, and the situation they have to face regarding the exercise of this right, based on the social barriers they encounter.

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OED. (2023). El discurso de las mujeres con discapacidad en torno al ejercicio de la maternidad y su derecho a formar una familia. Ministerio de Derechos Sociales y Agenda 2030, Gobierno de España.

Description: Sociological study that provides knowledge about the reproductive rights of women with disabilities from their own experience, and highlights the barriers and needs they face at political, economic, and social levels.

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«Είμαι σπάνια, έχω αόρατη αναπηρία»

Description: In this podcast episode, Mammamu talks to Sotia Kythraiotis who has a rare disability. She talks about the challenges she faced and still faces and what she would like people to know about invisible disabilities.

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Υφίστανται έμφυλη βία οι γυναίκες με αναπηρία στην Ελλάδα;

Description: This podcast discusses the results of survey on gender based violene, the Greek legal framework that applies in the case of gender-based violence incidents, the financial obstacles they face and more.

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